對於肌肉失養症的我來說，適度的伸展運動是重要的，需要和復健部醫生及物理治療師及職能治療師相互溝通，找到適合患者的運動強度，以免損傷原有的能力，其實要多觀察病患的反應及狀況，做適度的調整。物理治療師及職能治療師大都接觸中風或車禍後復建的病患，對於肌肉病變的患者接觸較少，不過，當天我去聽到兩個不錯的建議，一個是建議採用少量多餐的方式，所以我現在就不按握力器，而改採握拳，約一個小時一次，每次十下，另外一個獲得的建議就是要加入一些協會組織，尋求專業諮詢與協助。
在運動方面來說之前的強度，不見得適用於一個月後的病患，要懂得適度的調整，以免過度的訓練，造成反效果，以我個人為例，今年感受到身體的不適，來自於四月份起每天都自己訓練，包含抬腳，原地踏步，手按握力器，滑輪椅等等，造成到最後，連開車的排檔切換都覺得相當吃力，睡覺時，肌肉痠疼感很嚴重，骨頭和骨頭碰觸在一起很有感，白天則是會覺得雙手手臂痠脹感，後來由每天的練習，放寬為一個星期一次，並且把每次的數量降低，就好多了，睡眠品質也大幅改善，雖然還是會感受到體力的下滑，但切記，不要過度訓練，過往的訓練數絕對不適合未來的你，要懂得適度的調整，學習放下與接受，並接受他人的協助，才是最佳解。
雖然說肢帶型肌肉失養症(LGMD)和裘馨氏肌肉失養症(DMD)不同，但在伸展運動的概念上我想有些是值得來學習的，從Youtube上搜尋到下列我覺得還不錯的影片，和大家分享，可以使用Youtube上翻譯的功能，然後選擇繁體中文，就可以有中文字幕，更可以協助快速進入及了解。
Stretches for Duchenne Muscular Dystrophy
發佈日期：2012年1月18日
This video walks you through different types of stretches for Duchenne muscular dystrophy.
A regular stretching regime to keep muscles and tendons supple should be part of a young man's daily routine in order to help prevent the development of contractures. Contractures are a tightening of the muscle and tendons, which limit the full range of movement in a joint. They are inevitable if a regular stretching program is not part of a boy's daily regime. This tightness occurs because not all muscles lose strength at the same time or pace, and boys with Duchenne develop irregular postures to compensate for this uneven weakness.
Video Blog 1 - Daily Stretching for Duchenne - Duchenne Therapy Network & CureDuchenne Education
發佈日期：2014年6月17日
Duchenne Therapy Network and CureDuchenne presents the first video blog in a series to educate those affected by Duchenne on physical therapy, daily routines and equipment. This edition is on the basics of a daily stretching routine for those with Duchenne. For more information go to www.DuchenneTherapyNetwork.com or www.CureDuchenne.org. If there are any questions, please feel free to contact: Duchenne Therapy Network at Jennifer@DuchenneTherapyNetwork.com or CureDuchenne at Alicia@CureDuchenne.org
Video Blog 2 - Ankle Mobility Management - Duchenne Therapy Network & CureDuchenne Education
發佈日期：2014年7月15日
Physical Therapy tips and tricks for those with Duchenne muscular Dystrophy. This video addresses management of ankle contractures with stretching, AFO night splints, serial casting and orthopedic surgery.
Video Blog 3 - Swimming for Duchenne - Duchenne Therapy Network and CureDuchenne Education Series
發佈日期：2014年8月20日
Physical Therapy Tips and Tricks for Duchenne Muscular Dystrophy. This video demonstrates some of the therapeutic swimming programs for those with Duchenne.
Video Blog 4 - Mobility Scooters - Duchenne Therapy Network and CureDuchenne Education Series
發佈日期：2014年9月22日
Duchenne education series by Duchenne Therapy Network and CureDuchenne. This episode explains the when, why and how of using mobility scooters for those with Duchenne muscular dystrophy. Modifications which can be made inexpensively and easily to help the scooters fit younger boys are demonstrated also.
Video Blog 5 -School Basics for Duchenne- Duchenne Therapy Network and CureDuchenne Education Series
發佈日期：2014年10月15日
This video in the Duchenne muscular dystrophy education series helps to provide solutions to common difficulties at school that those with Duchenne experience.
Video Blog 6 - Power Wheelchairs for Duchenne - Duchenne Therapy Network & CureDuchenne Education
發佈日期：2014年11月17日
Those with Duchenne muscular dystrophy have a lot of decisions to make regarding specialty equipment. Choosing the right power-wheelchair is very important. This video helps to explain the various power drive and seating options available and how to choose the right one.
Video blog 7 - Advanced Power Wheelchair Options- Duchenne Therapy Network & CureDuchenne Education
發佈日期：2014年12月18日
Those with Duchenne may have increasing need to have complex technology integrated in to their power wheelchair to support their body properly and to maintain their ability to be independent with mobility and activities of daily living.
Video Blog 8 - Yoga for Duchenne - Duchenne Therapy Network & CureDuchenne Education Series
發佈日期：2015年1月22日
For those with Duchenne muscular dystrophy, flexibility is difficult to maintain. Yoga offers an alternative from traditional stretching routines to alleviate some tension. Scott Brown describes this and how it has also helped his breathing and circulation.
** CureDuchenne and Duchenne Therapy Network advise all to seek medical advice prior to initiating any yoga or alternative means for health and fitness. Yoga poses can be very beneficial in many ways although with Duchenne, only poses to enhance flexibility, breath and circulation should be used. Strength poses should never be used.
* The views and opinions in this video are explicitly that of Scott Brown and not of these 2 organizations.
Video Blog 9 -Self Stretching for Duchenne- Duchenne Therapy Network & CureDuchenne Education Series
發佈日期：2015年2月17日
Physical therapy and home stretching programs are important for someone with Duchenne muscular dystrophy. Self-stretches can add additional benefit for maintaining range of motion. Here are a few of the most commonly used self-stretches. There is a printable handout available on www.DuchenneTherapyNetwork.com/care-topics/
Video Blog 10- Abilities Expo Recap- Duchenne Therapy Network & CureDuchenne
發佈日期：2015年3月24日
Abilities Expo is where manufacturers and vendors are able to demonstrate their latest innovations. This year's Abilities Expo in Los Angeles had some new ideas that would benefit those with Duchenne muscular dystrophy. Accessible vehicles, alternative drive controls, new power wheelchair functions, robotic exoskeleton,advocates for disability rights and assistive technology resources are all covered here.
Video Blog 11 - Alter G AntigravityTreadmill- Duchenne Therapy Network&CureDuchenne Education Series
發佈日期：2015年4月22日
The Alter G antigravity treadmill is a good way for those with Duchenne muscular dystrophy to walk in a safe environment. The Alter G, antigravity treadmill helps those who are having difficulty walking, have experienced a leg fracture or are unsafe walking. Visit www.AlterG.com to find an Alter G treadmill in your area.
Video Blog 12- Wrist, Hand Orthosis (Brace)- Cure Duchenne Cares Education Series
發佈日期：2015年5月27日
Those with Duchenne muscular dystrophy can experience significant muscle stiffness and joint contractures in the wrist, hand and fingers. Wrist-Hand-Orthoses can be used to improve resting position, increase range of motion / flexibility and improve hand use.
Video Blog 13 - Exercise Study in Duchenne - CureDuchenne Cares Education Series
發佈日期：2015年6月17日
This video discusses the No Use Is Disuse study published in 2013 by M. Jansen which describes the bicycle exercise routine of boys with Duchenne and the benefits found over a 6 month period. Stationary bicycle training and swimming are 2 activities that may be beneficial for those with Duchenne. Check out the swimming video here: https://www.youtube.com/watch?v=FzNJH7q7RGY
Video Blog 14 - CureDuchenne Cares answered the common stretching questions
發佈日期：2015年7月27日
CureDuchenne Cares programs are held across the country. Many questions are asked and answered at each session. Here are a few of the most commonly asked questions regarding stretching for someone who has Duchenne muscular dystrophy.
Video Blog 15 - School Limitations Related to Duchenne -CureDuchenne Cares Education Series
發佈日期：2015年8月27日
Those with Duchenne muscular dystrophy require modifications in their school environment, especially when it comes to PE class. This video helps to explain to parents and teachers the problem with typical PE activities and alternatives to them which better suit someone with Duchenne. Please refer to www.CureDuchenneCares.org for more information on Duchenne and special topics related to it.
Video Blog 16 - Transferring Someone with Duchenne -CureDuchenne Cares Education Series
發佈日期：2015年10月27日
For someone with Duchenne, moving from one position to another can become very difficult or impossible without the assistance of someone else or specialized equipment. This video explains 1 person, 2 person and mechanical lift transfers. It is important to do all transfers correctly for the safety of the person being transferred as well as the people doing the transferring.
Video Blog 17 - Massage Program for Duchenne -CureDuchenne Cares
發佈日期：2015年12月18日
Massage is a great addition to the regular home program for those with Duchenne muscular dystrophy. Massage has many known benefits for the body. In this video we are shown how to do a simple massage program at home to help decrease muscle and joint stiffness, increase circulation, ease pain, and promote overall relaxation.
Video Blog 18 - Nutrition Considerations For Those With Duchenne
發佈日期：2016年4月14日
Nutrition and proper diet are very important for those who have Duchenne. Topics including, portion sizes, proper body weight, hydration, bone growth, gastrointestinal health and intake of important vitamins and minerals and more are discussed in this video blog.
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